The Adventures of Metopic Benjamin!

My son was born with Metopic Craniosynostosis and this is my diary and notes of our journey. Please note that I am not a doctor and I have no medical training, this is only our experience and some research I've found while learning about this birth defect.

Pages

  • Welcome
  • Who are we?
  • Blog
  • What is Metopic Craniosynostosis?
  • How is it treated?
  • Resources

Resources


  • Van der Meulen, Jacques. “Metopic Synostosis.” Child’s Nervous System 28.9 (2012): 1359–1367. PMC. Web. 6 Jan. 2016.
  • Metopic Synostosis (Trigonocephaly) | Boston Children's Hospital
  • Kuper, Bradley D. Behavior Patterns among Children with a History of Metopic Synostosis. Denton, Texas. UNT Digital Library. http://digital.library.unt.edu/ark:/67531/metadc2633/. Accessed January 5, 2016.
  • Craniosynostosis | Congential Heart Defects | NCBDDD | CDC http://www.cdc.gov/ncbddd/birthdefects/craniosynostosis.html
  • Primary Craniosynostosis - NORD (National Organization for Rare Disorders)
  • Craniosynostosis - American Family Physicial, Craniosynostosis: Caring for Infants and Their Families, LAURA BUROKAS, MS, APN, CPNP/CCNS - American Association of Critical Care Nurses 
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  • ▼  2016 (21)
    • ▼  May (2)
      • We've Graduated and We're Done!
      • Call from the Neurosurgeon!!!!!
    • ►  April (1)
    • ►  February (6)
    • ►  January (12)
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