SOOOO SOOO RELIEVED! On May 5th we saw Dr. Proctor at Boston Children's Hospital for a surprise check up since our Orthotist Brian was amazed by Benjamin's progress at his Midterm scan! So two weeks after seeing the orthotist we went in. Dr. Proctor do a quick check and some measurements and told us we were done with helmet therapy!!
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| Benjamin with Dr. Proctor, Neurosurgeon at Boston Children's Hospital |
When talking with Dr. Proctor he did say we could if we wanted go for a second helmet but he didn't feel it would be necessary it would only aid in smoothing out some indentations but regardless those would eventually go away with time as he grows and ages. We were concerned that it may affect development if we ended too soon and he assured us everything is as it should so a new helmet would be strictly cosmetic. This was aligned with what the orthotist had said as well. My husband and I exchanged quick glances and agreed we were done! I was so happy and relieved for my boy. The helmet was off and off for good. We did talk about changes and risks of regression which with metopic is less than 5% especially since we caught it so early. But Benjamin would be constantly monitored until he hit 12 years of age. We would have a field trip up to Boston twice a year for appointments.
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| Benjamin with Orthotist Brian from Hanger Clinic |
So this morning we went to our last ever Orthotist appointment at Hanger Clinic. Orthotist Brian took some measurements and was amazed that just in the three weeks since we last saw him (April 21st where we got the scan, May 5th was neurosurgeon, and today, May 12th) Benjamin's head continued to adjust more! It was even better news since from the time we saw him to Dr. Proctor I kept his helmet on religiously! We said good bye to Brian and he gave Benjamin a adorable little diploma for his baby book.
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| My happy little helmet graduate! |
So he's not in the clearing yet but he's far from the swamp lands! Now we monitor, check development, meeting milestones, and keep an major look out of internal cranio pressure or vision which is common with Metopic Cranisynostosis babies! But we are so close to normal is beautiful!!
