 |
| Prayers for Benjamin - Cranio Care Bears |
So I am a Facebook member of the group "Cranio Kids - Craniosynostosis Support". It's a private group for only people which a child who has some form of Craniosynostois. Let me start by saying this group is AMAZING and so supportive and helpful. I was previously a member of several breastfeeding support groups and I felt judged and belittled when I asked a question... also God forbid you have a difference of opinion. Cranio Kids is everything those groups weren't. I learned a lot about Dr. Proctor, Boston Children's Hospital, Endoscopy, Surgery, Helmet Therapy, etc. I truly feel like we can go into this with full confidence and little risk. Because of this group I am comfortable with mine and my husbands choice to agree to the endoscopic surgery and definitely not be embarrassed by the idea of a helmet (in fact, I'm willing to embrace it and have already started thinking of stickers to buy for Benji). In addition to helpful advice, facts, links, and reference checks for doctors/hospitals, I was directed to the Nonprofit Organization "Cranio Care Bears". Let me start this by saying WOW!
 |
| Surgery Care Box from Cranio Care Bears Nonprofit |
From their website "Cranio Care Bears goal is to spread awareness, support & compassion through loving care packages to families of children facing surgery for craniosynostosis. Our care packages include items for the child & family to relieve the stress accompanying this very serious surgery. Cranio Care Bears also offers one on one support before, during & after surgery. We strive to bring awareness of craniosynostosis to families & the medical community for early detection." Cranio Care Bears are two cranio moms whose sons had craniosynostosis and underwent surgery. Mom's Summer Ehmann and Shelby Davidson sons both under went CVR.
Cranio Care Bears is pretty amazing. The entire surgery box is free and filled with many necessities you'll need that day and a few extra perks. Benjamin's contained:
- Prayer Chain
- Handmade Blanket
- Handmade Hat
- Handmade Lullaby CD
- Two teething rings
- Pajamas
- Socks for Benjamin
- Rattle
- Shampoo and Conditioner
- Whisp - teeth cleaners
- Chapstick
- Tissues
- Toothpaste
- Toothbrush
- Candy (lollipops, chocolate, skittles, m&m's
- Gum
- Pen
- Bookmark
- Information guide on Cranio
- Packing list for the hospital
- Slipper socks for Mom
- Tea
- Emergen C
- Tylenol
- Granola bar
- Cashews
- Prayer card
It's pretty amazing that they send these out and SO many especially for free! It truly made my day and filled my heart with love and appreciation!
 |
| Close up of some of the items in the Cranio Care Bear Boxes |
For more information please visit their page and HIGHLY consider donating! This week they posted a picture of 9 care packages they sent out!! Those get costly. http://craniocarebears.org
No comments:
Post a Comment