Welcome!

Hello and Welcome to my blog. The purpose of this blog is to document my Adventures with Benjamin. Benjamin is my youngest son who has been diagnosed by his pediatrician as having Metopic Craniosynostosis. Craniosynostosis affects only one of every two thousand live births and Metopic Craniosynostosis only affects 27% of all Craniosynostosis births. 

My hope is that this blog will provide me some piece of mind, a place to keep my notes and research, and eventually some hope and guidance for other parents in the world who might share this diagnosis. I know so far the very few youtube videos and websites have certainly given me some understanding as we sit and wait for our appointment at Boston Children's Hospital.